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Redefining the prostate cancer journey

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Need

In Canada, prostate cancer is the leading cancer amongst men, where 1 in 8 men will be diagnosed in their life time1. While the survival rate is 90% when it is diagnosed early, the prostate cancer experience can often be complex, confusing, and frustrating. There is a need for emotional support and improvement in all dimensions of care. The survivorship journey is never an easy one, but one that can be made better with the right kinds of support at the right times.

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Our Service

TrueNTH, an initiative of the Movember Foundation and supported by Prostate Cancer Canada, is developing, piloting, and evaluating innovative projects across Canada to make positive changes for prostate cancer survivors at all points of their cancer journey. Healthcare Human Factors was entrusted to spearhead the design and workflow of three such platforms:

  • SHAReClinic is a sexual health rehabilitation eClinic that allows the prostate cancer patient and his partner to obtain personalized education and care to restore sexual health. The patient and his partner is matched with a health coach who can provide tailored support and guidance along the recovery pathway.
  • Peer Navigation matches the prostate cancer patient, and his partner or caregiver, with a trained prostate cancer survivor (called a Peer Navigator). The Peer Navigator is there to support and guide the prostate cancer patient (and his partner or caregiver) throughout the prostate cancer experience.
  • ASSIST is a platform that provides directed online content and resources customized for the prostate cancer patient at specific points of his journey, so that he can feel confident to manage and make informed decisions about his care and treatment.

Our Human Factors Designer, Jason Luk, joined the project team soon after he started at Healthcare Human Factors. Through this experience, he gained fresh perspectives on what it is like to work at the frontlines of healthcare.

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Listening closely to the stories of prostate cancer survivors in user testing, made it clear to me the immediate benefits our team will make in the lives of those affected by prostate cancer.

Jason Luk, Human Factors Designer

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Results

The TrueNTH platforms, along with several other projects that improve prostate cancer care, will be deployed in early 2017. Around one hundred patients across Canada will participate in each program, and researchers will collect data and evaluate its effects on quality of life and health outcomes. After the pilot phase, TrueNTH will continue to deploy and/or integrate the projects that were most effective to become long-term sustainable care services for prostate cancer survivors and their partners / caregivers. Ultimately, the most effective TrueNTH projects will positively redefine the prostate cancer survivorship journey.

1Canadian Cancer Society, 2015.

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